Thursday, January 23, 2014

Some of the Help Bring Lucas Home updates.

01/23/2014

A couple of things are sneaking up on us. February is CHD Awareness month. Which is a huge part of our lives since Lucas was born with CHD and we will be posting information on that all month. Also Lucas's Angelversary is Feb. 19th followed by his Birthday on the 22nd. This will be an emotional month and we will need the love and support from all of our followers!



01/09/2014

February 19th will be one year. We will be remembering Lucas in Salem either the 19th or the 22nd (his birthday) 
We will be releasing sky lanterns and if you would like to bring one or a balloon to release you are more than welcome and we would love to see you all!

Wednesday, August 7, 2013

Moving Lucas Home

In February we lost our Lucas in a tragic accident. Lucas wondered off and fell into a near by creek. I found him and gave him CPR until the ambulance came. They were able to get a pulse and Lucas even tried breathing on his own. We were hopeful, so hopeful. We were sure that meant he would come home with us. While they were life flighting him to Vanderbilt we came home so I could change out of my wet clothes and grab some clothes for Lucas to come home in. We got his orange and blue plaid shirt that my sister got Nicholas for Christmas a couple of years before but Lucas had taken over, some jeans and a jacket. We didn't know how things would change. We got to the hospital just in time to spend about 8 hrs with him before he passed. We had his celebration of life, on the day we should have celebrated his 3rd birthday. He wanted a Dora party so bad. We already bought all of the decorations, plates, cups, even his Happy Birthday banner. He wanted a Dora party for his second birthday but he settled for a polar bear party instead.
This all happened in Tennessee. We came out here so Nick could pursue a job opportunity and be around his family but it was not meant to be. This is not our home. We can't live where Lucas couldn't. 
We need to go back home now! We need to go back to Utah. Our family is out there, Lucas's family is out there. It is our home. It was his home! We have decided to move back and we are taking Lucas with us. We are piecing our family back together. We can't leave with out him. Please help us get our family back together! My family has put together fundraisers and yard sales to help us raise money to get back home! If you can help in any way please go to
facebook.com/HelpBringLucasHome or gofundme.com/helpbringlucashome

Sunday, November 4, 2012

 We all know Lucas is a little sensitive when it comes to food, medicine, and illness. Back in July Lucas got extremely sick, he wouldn't stop throwing up or having diarrhea he couldn't even eat or drink, he got so dehydrated he had to go to the hospital twice in two days. They gave him fluids threw an IV and once we got to the hospital and broke out in hives. Now every time he gets sick, hot, diaper rash, anything he breaks out in hives. Which means we carry Benadryl and EpiPens everywhere we go.





After the kids seeing Benadryl around the house car and diaper bag they decided one day they wanted to drink it, we called poison control and even the cardiologist and they told us what to do and watch out for, Lucas had a different side affect, JUMPING OFF THE WALLS! Nicholas was so tired but couldnt sleep and their room was so so sticky. Everything was alright that night after they ate and we watched them closely but childproof isnt childproof in our house!


Thursday, January 26, 2012

Lucas Turning Two, CHD Awareness Month, & The Yearly Check Up

We are so proud of Lucas! He will be two next month and he has come so far, he can walk, run, and say just about anything!! With his two year birthday coming up it also means his yearly check up with the cardiologist is too. We are so nervous for him to go under again but I'm sure he will be fine.
We are having a "heart" party when we have our valentines day party this year and I'm so excited. I love CHD awareness week and I just hope the word keeps spreading!!

Wednesday, March 23, 2011

Almost Better

Lucas had his sedated echo today and they said he was almost all all better. His heart looks great and the tricuspid valve is looking so great. They don't want to see him till next year!!!
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Saturday, March 19, 2011

Don't cry because it's over. Smile because it happened. -DrSeuss


Thursday, March 10, 2011

From Little Brother to Big Brother

I am so excited for Lucas to be a big brother BUT because of his defect and complications he doesn't act his age yet and I'm afraid I'm not going to be able to take care of such a needy child, a newborn, and a 2 year old. WHAT WAS I THINKING?? 
Dada Lucas and Nicholas having so much fun on the slide. 
Lucas 

Wednesday, March 2, 2011

Lucas Has A Sedated Echo-Cardiogram

Lucas is going to be going in for a sedated echo-cardiogram this month to check and see how his heart is healing and to check on his Tricuspid Valve Regurgitation. Even though im worried about what the results are I think im more worried about the not eating for almost 24 hrs and and how sick he gets after he wakes up from the sedation. He had a sedated echo about 6 months ago, and they said his heart looked great!!! So instead of a 3 month visit they wanted to do a 6month, I just cant wait to get it over with!!!

Monday, February 28, 2011

A Diagnosis Forgotten?

I was going through a book the other day that I use to keep at my side 24/7. Its called Its My Heart. When Lucas was in the hospital he was constantly having complications, when I would hear the doctors or nurses talking and I didn't know what they were talking about I would look in the book and it explained EVERYTHING!! Any thing about they heart or most medical terms a CHD mother would hear, it was in the book.
So I was going through it and found a paper that the doctors gave us. It had a heart on it and arrows it said at the top Tricuspid Valve Regurgitation. I looked closer at the picture and realized Lucas has another Heart defect!! It all came back! In the operation to fix his VSD one of the tools pressed hard on one of the little valves between his atrium and ventricle, They say that he should be able to live with this for a few years until his heart is big enough for the fix or it fixes on its own.
He goes to the cardiologist every 3 months and I just scheduled his next appointment for next month. A sedated echo cardiogram. Because I forgot about this HUGE little detail I have no idea how the valve is doing and will make sure to ask!!